Existence of horrific disease in Kachchi a serious blow on face of humanity in 21st century

9 Responses to Existence of horrific disease in Kachchi a serious blow on face of humanity in 21st century

  1. zaib April 6, 2010 at 2:48 pm

    Omg how did this happen to them?

  2. Dr Mustafa Baloch April 6, 2010 at 2:55 pm

    This is ”Xeroderma Pigmentosum”. It is an untreatable hereditary skin disease. However, the most potent relieving practice is to keep the children away from sunlight (even slightest amount). People of this town should be educated and urged to avoid endogamy!

  3. JahanZaib Baloch April 6, 2010 at 6:38 pm

    dear Allah plz. help them.

  4. SAAD April 6, 2010 at 7:25 pm

    So. Dr sahab. Is this disease confined to only ‘Balochistan’ or has traces in other areas as well.

  5. Sajid Buledi April 7, 2010 at 5:38 am

    Baloch nation must help them…………

  6. taha May 10, 2010 at 2:13 pm

    A VILLAGE “LUNDI KHUSA” IN BOLAAN DISTRICT NEAR SIBBI IN BALOCHISTAN IS ATTACKED FROM A CHILD DISEASE ‘XERODERMA PIGMENTOSUM’ RESULTING SEVERE PAIN.. THOSE CHILDREN NEED OUR HELP.. GOVERNMENT IS DOING NOTHING SO YOUTH HAVE TO COME FORWARD AND HELP THOSE NEEDY CHILDREN .. JUST A SINGLE 1RS OF YOURS COULD BE A REASON FOR RELIEF FOR THOSE CHILDRENS YOU CAN VISIT THE WEB SITE ..
    WE WILL BE GOING PERSONALLY TO THAT AREA TO PROVIDE MEDICINES .. FOR THIS WE NEED YOUR FUND .. WE HAVE 5 DAYS LEFT .. FOR ANY QUERY OR TO GIVE YOUR FUND CONTACT TAHA 03218953644…

  7. Haneef baloch May 26, 2010 at 3:18 pm

    It is a genetic disease, in which the patient lack of the DNA repairing enzymes which are responsible for repairing of the damaged DNA by gamma rays of sunlight. so the skin of these patient will burn when these rays touch on their skin. This disease is inherited from the parents who are carrier of the mutant gene. Our initial diagnosis of disease is to draw the pedigree of family and find causes of this mutation, if its sudden come in family than we have to study it in molecular level. I am M.S/PhD student of biotech in karachi university and i am really interested to help these patients and to guide these family to avoid marrying their childern within the family. If any interested to contact me to give information about the history of families who suffering from this disease then please mail me. Haneef Baloch. rehman.haneef8@gmail.com.

  8. dr zaidi July 9, 2010 at 8:51 pm

    its really a painful experience having these patients in CMH QUETTA PAEDS DEPTT these dayz.they r being helped in everyway in this hospital.4 patients with this rare disorder r treated n their families counselled by the staff here.

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